# SMA Community

Keywords: spinal muscular atrophy, SMA, treatment, support, patient organizations, neuromuscular disorders, genetic diseases

> This page provides information about the SMA community, including details on patient organizations, support networks, and resources for individuals affected by spinal muscular atrophy (SMA).

## Details

- [SMA Finland](#): SMA Finland is a national association supporting individuals with spinal muscular atrophy (SMA) and their families, advocating for medical treatments, newborn screening, and continuous care pathways.
- [Spinal Muscular Atrophy UK](#): This UK-based organization empowers and supports people affected by SMA, offering practical advice, awareness campaigns, and opportunities for connection.
- [TREAT-NMD Network](#): A neuromuscular network ensuring the rapid delivery of innovative treatments to patients by developing tools for clinical and research purposes.
- [SMA Europe](#): A European umbrella organization uniting SMA patient and research organizations to promote collaboration and advocacy.
- [Association of Families of SMA](#): Founded in Italy, this nonprofit organization raises awareness and supports research for SMA through the experiences of affected families.
- [Patientenstimme SMA](#): A German platform empowering SMA patients by sharing news, research updates, and personal experiences through blogs and events.
- [Familles SMA France (FSMA)](#): A French organization focused on disseminating information and enabling effective therapeutic treatments for SMA.
- [EAMDA](#): The European Alliance of Neuromuscular Disorders Associations, advocating for neuromuscular disease patients across Europe.
- [Canadian Organization for Rare Disorders (CORD)](#): A Canadian network advocating for rare diseases, including SMA, and collaborating with healthcare systems and researchers.
- [Cure SMA Canada](#): A national charity supporting Canadian SMA families and funding research for SMA treatments and cures.
- [Association Against Spinal Muscular Atrophy Type 1 (ECLAS)](#): A French organization uniting parents and professionals to support SMA Type 1 patients and their families.
- [Initiative SMA](#): A German initiative working with the Muscular Dystrophy Association to promote SMA treatment development through research and collaboration.
- [SMA Foundation](#): A Polish organization raising awareness about SMA and supporting parents through a network focused on genetics, diagnosis, and treatment.
- [Spinal Muscular Atrophy Foundation (FundAME)](#): A Spanish nonprofit improving the quality of life for SMA patients by supporting research and advocacy.
- [EURORDIS](#): A global patient-driven alliance representing rare disease organizations and advocating for 30 million people with rare conditions.
- [SMA Österreich](#): An Austrian nonprofit connecting SMA patients and their families through volunteer-driven initiatives.
- [Orphanet](#): A public online resource offering information to improve the diagnosis, treatment, and care of rare diseases like SMA.
- [AFM-Téléthon](#): A French organization led by patients and families, driving innovative actions to combat rare neuromuscular diseases.